Please note that whilst 21 Together supports the aims of these studies, the research teams provide any text describing/advertising the study, and we, as a charity, have no involvement.
The NIHR HealthTech Research Centre (HRC) for Cardiovascular and Respiratory Medicine are running a national project under the theme “Heart Disease in Children”, which aims to support the development of new technologies for children and young people with both congenital and acquired heart conditions. They recognise that innovation is often driven by clinicians and researchers and doesn’t always fully reflect the day-to-day realities of families. For that reason, we have made it a core priority to listen directly to children, families, and frontline professionals about their experiences, needs, and priorities. Which is why they’ve created a short survey for families to fill out. Please see the flyer for more details.
📣Calling all parents of children with Down Syndrome💙💛
❓Are you a parent or carer of a child with Down Syndrome aged between 6 months and 13 years?
👉 You're invited to take part in a short open question online survey exploring how parenting a child with Down Syndrome may shape your day-to-day life, sense of self and connections with others. We want to hear your story in your own words.
🧑🎓This study is part of an MSc Occupational Therapy research project with Leeds Beckett University. It aims to better understand the real experiences of parents, challenges, adaptions and everything in between.
🤫Your participation is confidential. No identifying information will be published. All responses will be anonymized. 💬Some responses may be quoted with pseudonyms in research, reports or publications to illustrate key themes.
❗️Participation is entirely voluntary and you may withdraw at any point before submitting the survey.
👉To take part, complete the survey here: https://ow.ly/N7Rr50XSSil
❓For questions regarding the study, please contact l.cameron7646@student.leedsbeckett.ac.uk
Project CECiLiA is undertaking research about Care, (Education) and Treatment Reviews for people with learning disabilities. To get involved see the poster here.
A university student at University College London (UCL) is currently conducting a research project titled “Improving Mathematical Abilities in Children with Down Syndrome and Williams Syndrome: Symbolic versus Non-symbolic Training Programmes.” They are now beginning the recruitment phase for the intervention study and would be incredibly grateful for your support. They are recruiting children with Down syndrome and Williams syndrome who are aged between 5-11 years and their parents. Please see the flyer for more information.